Saturday, December 18, 2010
Monday, December 13, 2010
This year will start a new path with Michael's eye issue. I haven't written much about it, I
was trying so hard to find an answer. Well we have one, Anterior Segment Ischemia following laser therapy for retinopathy of prematurity. Basically he is blind in one eye and it is now smaller in size and there is not a surgery that can repair his eye or sight. All the damage was caused by the ROP laser surgery Michael received on 12-31-09.
I know it is the most difficult time when your preemie is in the NICU and you are so unsure about so many procedures. But, PLEASE learn this lesson from me... ROP laser treatment is not a simple precautionary surgery as I was told by the pediatric ophthalmologist. ROP laser surgery is extremely precise and should only be done by a ROP specialist.
We may need to use scleral shells to keep his bone growth correct around the smaller eye. We pray that his eye does not completely stop growing, but most likely this is the road we will be taking.
Saturday, December 11, 2010
Monday, November 15, 2010
Monday, November 8, 2010
Monday, October 18, 2010
Saturday, October 9, 2010
Monday, September 6, 2010
Saturday, August 14, 2010
Thursday, August 5, 2010
Tomorrow he is going to be 11 months old (7mo adjusted)!! How far he has come in those 11 months is just amazing!
Eye update: No one wants to remove his cataract in fear of causing more damage. We are truly scared to have any more surgeries after what happened during the first one... waiting is fine with us.
Tuesday, July 20, 2010
Michael has been doing great with sitting and starting to crawl, but he does get a bit frustrated. He now has two teeth and has been eating new big boy foods, I think he is done with baby food :o)
We did get a call from Bascom Palmer and were told they wanted us to come back down for one more opinion before his cataract surgery. His MRI results have now been seen by a team of neurologist, plastics and now one more pediatric opthamologist ... I love Bascom Palmer! The best part of this news is that they do think he has enough vision to preform the surgery!!
Friday, June 25, 2010
Wednesday, June 23, 2010
Wednesday, June 9, 2010
6/9 Michael got his 1st tooth!!
The last few weeks were a scary ride. We went to Miami to have Michaels cataract removed from his left eye, after being vented under anesthesia Dr. Berrocal informed us that she was unable to perform the surgery due to something pressing on his optic never. She was unsure what this was, but she told us it was between his eye and brain. So, we had to go back to ACH to have a MRI and Orbit C scan. This was done under anesthesia and ended up being a 13 hour ordeal. Well worth every minute to find out Michael did not have any masses or tumors!!! It was more damage to the very back of his eye, to the optic disk. Although this is not good, we already have come to terms with all the damage done to his left eye during the ROP surgery and just relieved that his brain is perfect. At this point we were only told the preliminary MRI results and are waiting for Dr. Berrocal to tell us what she thinks and what our next step is.
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